SHARE YOUR STORY - PMDD Around the World


For many living outside of the United States, PMDD is relatively unheard of. Many sufferers do not discover their diagnosis through traditional care, but rather by identifying their symptoms with the symptoms of others. The PMDD around the world campaign seeks to create greater awareness of the discrepancies of services available to those living with Premenstrual Dysphoric Disorder in various areas of the world.

The video you are contributing to is an exciting opportunity to raiser greater global understanding of Premenstrual Dysphoric Disorder (PMDD) for various geographic locations around the world. By sharing your story, you can educate others about:

  • What PMDD is called/named in various languages
  • How PMDD is diagnosed/ruled out
  • How support is provided (locally and online) and
  • How much awareness exists of PMDD/PME among patients and providers
  • What can be done to increase awareness, support, and diagnosis

We are inviting anyone impacted by PMDD to participate regardless of gender-identification or geographical location. In an effort to highlight countries and experiences outside of the United States, submissions from US residents will not be included in this particular video. Be on the lookout for additional opportunities that will be available to those in the United States!


  • What is the video going to be used for? This video will be used as an awareness tool for fellow patients, providers, and advocates. It may also be used as a fundraising device and/or supportive material for grantmaking opportunities.

  • Where will this video be shown? This video will be shared via Facebook, Twitter, and YouTube as well as on our website at and select events related to IAPMD.

  • Do I have to be named? You do not. Using your name or a pseudonym is entirely up to you. Furthermore, you may request that we not tag you on social media when the video is published.

  • What if I want to take part anonymously? Your request for privacy will be honored to the best of our ability. Should video not be the platform for you, you can also help in this effort by sharing your personal story to our blog. Please send written submissions to

  • When does the video need to be submitted by? September 25, 2018.


  • Please film your video in landscape mode
  • Please film under good light and with minimal sounds around you
  • You may use a headset or microphone for better sound quality
  • You may use a smartphone, webcam, or any suitable video recording device


When you are ready to submit your recording, please send an email to Adrienne Pastula at You will then be invited via email, to submit your recording via Dropbox. If your internet provider does not permit access to Dropbox, we will work with you to find a suitable alternative.


We are seeking to compile the following information and experiences. Please record the following in your native language as well as English (if able, but not required).

  • “Hello, my name is ___________.”
  • “I have PMDD.”
  • “I live in ______________.”

Please use the following prompts for inspiration.

  • I was/was not yet diagnosed with PMDD when I was _____ years old.
  • Awareness of PMDD where I live is ________________ because of _______________.
  • How is PMDD most commonly diagnosed and treated where you live?
  • How does your family feel about and/or understand PMDD?
  • How do doctors where you live respond to your diagnosis as far as treatment, compassion, and care?
  • What do you feel is a high-priority need where you live for someone with PMDD?

We sincerely thank you for your participation in this project. Your contribution will go a long way in helping to improve patient outcomes around the world.

Please contact us if you have any questions!


Adrienne Pastula
Administrative Assistant
International Association For Premenstrual Disorders