Peer Support Groups
Group support (like the online support groups listed below) are free and accessible 24/7 on various websites including Facebook and Inspire.com. If you are seeking support from a group of people also impacted by PMDD and/or PME, group support is a good choice. It is important to remember that any information or content you post in an online support group may not be 100% confidential, as much as the group admins and moderators try to keep it that way.
Inspire - a non social-media support forum
Other recommended Facebook Support Groups
We also run video peer support meetings. If this is something you feel you may benefit from then you can learn more here.
Non-social media PMDD Community
Inspire is an online forum where you can interact if you are not on social media, or prefer to talk anonymously. It is a moderated safe space where you can ask questions and give/receive support.
There is also an app (currently only available on apple - soon to be available on android)
IAPMD Facebook Support Groups
These closed groups are moderated by IAPMD. They are an accessible space that can be accessed 24/7. We run 7 groups to create a variety of spaces for different people affected by PMDD/PME.
IAPMD - PMDD & PME Support
A closed group for anyone affected by PMDD/PME or wanting to learn more. All are welcome here - patients, partners, friends, providers, and anyone else who is looking to learn and/or give support to those with PMDs.
IAPMD - PMDD Moms Support Group
A closed group for moms with PMDD. To join this group you must be a parent and you must have PMDD. Moms-to-be are also welcome! A safe space for learning and support during the challenges of parenthood.
IAPMD Young PMDD & PME Support Group
This closed group is a place for any younger folk with PMDD or PME of an underlying disorder. The challenges of navigating PMDD at a younger age are different - this is a space to discuss and get support from peers also of a younger age.
IAPMD Canada PMDD Support Group
A closed support group to give and receive advice, share experiences and meet other patients/peers in Canada.
IAPMD - Parents of PMDD Support Group
This closed group is a place of support for parents of children and young people living with PMDD and/or PME (Premenstrual Exacerbation of an underlying disorder).
IAPMD - PMDD, Oophorectomy, Hysterectomy, & Life After
This is a closed is a group for individuals who suffer(ed) from PMDD and who are considering/having/prepping for/going through or recovering from surgery as a last line treatment for PMDD.
IAPMD - PME & TDPM Grupo de apoyo para hispano hablantes
Este es un grupo cerrado para todos quienes hablan español y viven con TDPM (Trastorno Disfórico Premenstrual) y están buscando apoyo.
IAPMD - Unlearning PMDD (Life after surgery for PMDD)
A group for those who have undergone surgical treatment for PMDD/PME (at least 4 months post-op) and wish to work through the difficulties and learned behaviors that can come from years of battling PMDD/PME.
Other recommended Facebook Support Groups
The following groups are not run or moderated by IAPMD but our staff and volunteers have found them useful! There are a number of groups to suit all on Facebook - do take some time to find ones that you feel comfortable in.
PMDD Nederlands Support
A support group linked to the PMDD Association in the Nederlands - recently founded and growing fast!
Sindrome Premestruale Associazione Nazionale ITA-PMS Group
A support group for people with PMDD in Italy.
UK PMDD Support
A private support group to give and receive advice, share experiences and meet other sufferers in the UK. Women/AFAB only.
PMDD & PMS Support - Sweden
An inclusive discussion and support group for those in Sweden.
Trastorno Disfórico Premenstrual:información y apoyo España+Latinoamérica
Este grupo pretende recoger información de carácter científico sobre el Trastorno Disfórico Premenstrual así como crear un punto de encuentro para personas que padecen esta enfermedad en España y LatinoAmérica. Mujeres / AFAB solomente.
PMDD norsk gruppe
En privat og lukket støttegruppe for individer med PMDD, hvor man kan dele kunnskap og erfaringer samt stille spørsmål og møte andre som lider av PMDD i Norge. Gruppen er kun for kvinner/AFAB.
PMDD New Zealand Support Group
This group is designed for women/AFAB in New Zealand who suffer with premenstrual dysphoric disorder. Use it to share you thoughts/feelings, what helps, things you struggle with, information/resources etc.
PMS & PMDD Vlaanderen
Onze besloten FB groep, "PMS en PMDD Vlaanderen" is er voor vrouwen die zich in symptomen van PMS en PMDD herkennen.
Trouble Dysphorique Prémenstruel (TDPM)
Ceci est un groupe de soutien au personnes souffrant du TDPM.
Ce groupe se souhaite milieu de respect et de soutien permettant des échanges positifs entre personnes TDPM.
“I love this group so much! It’s like you folks ‘get it’ and understand that YES it does get that bad, but remember you are NEVER alone ... even in the darkest moments ... there is always someone out there who will listen”